Win an Authentic Epiphone Les Paul Jr. Autographed Guitar Autographed by Lady Gaga!

Win an Authentic Epiphone Les Paul Jr. Autographed Guitar Autographed by Lady Gaga!

 What a great fundraiser!     The Lupus Alliance of America, Long Island Queens Affiliate is Raffling off tickets to win an autographed guitar by Lady Gaga, to help raise funds to care for those living with lupus and to fund research into the cause and cure.he Lupus Alliance of America, Long I

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FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

FDA Priority Review Designation for BENLYSTA® First Drug for Lupus in 50 years

ROCKVILLE, Md.--(EON: Enhanced Online News)--Human Genome Sciences, Inc. (Nasdaq:HGSI) and GlaxoSmithKline PLC (GSK) today announced that the U.S. Food and Drug Administration (FDA) has granted a priority review designation to BENLYSTA® (belimumab) as a potential treatment for systemic lupus er

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Product Review: Tanka Bars, Gluten Free Healthy Energy Bars

Product Review: Tanka Bars, Gluten Free Healthy Energy Bars

When we're on the go, many of us grab a protein bar as a snack. While a protein bar can provide quick energy, it also can provide quite a bit of sugar and an equally quick post-energy letdown, not to mention some dubious chemicals which make them questionable for certain medically necessary diets. I

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ButYouDontLookSick.com joins

ButYouDontLookSick.com joins “TEAM CHRISTINE” for Lupus Walk

The ButYouDontLookSick.com 7 year anniversary celebrations are coming to a close. As always I like to close on a positive and proactive note. There is power in numbers. We have tens of thousands of readers of butyoudontlooksick.com... we could move mountains one pepple or rock at a time. Every donat

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Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker in NC

Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker in NC

Christine Miserandino from ButYouDontLookSick.com will be the keynote speaker for the Piedmont, NC chapter of the Lupus Foundation. This is the 10th annual Lupus Summit on September 11th.  The deadline to order tickets is September 1st-- so act now!  Link to order your tickets is below. She wi

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Sick Humor: A Spoonie Anthem

Sick Humor: A Spoonie Anthem

It’s Sunday.  To most people that means possibly a trip to church and then a lazy day with their family.  It means that they start dreading the impending arrival of Monday and the start of a new work week.  Oh, to have a day like that….what I wouldn’t give.  My Sunday is known around my ho

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Official “I am a Spoonie” Photo Contest!!

Official “I am a Spoonie” Photo Contest!!

UPDATE: You may continue to upload photos to our gallery, however photos uploaded after August 25th, 1:00am EST will not be considered eligible for contest prize consideration.  Photos uploaded after August 25th may still be featured on our site, or included in any future media related to this c

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Diamonds, Capes and Spoons……YOU are a superhero too.

Diamonds, Capes and Spoons……YOU are a superhero too.

It wasn’t long ago when I heard Rob Thomas’ song “Her Diamonds” for the first time.  It was in the car after frantically changing the channel from a Disney star that shall not be named *coughmileycyruscough* much to the objection of my two Hannah Montana obsessed pre-teens in the back seat.

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Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

Flying: You’ll get there, besides isn’t the journey the point, as much as the destination?

I recently flew to New Zealand for a few weeks of vacation. My first REAL vacation since I was say 7? I was so excited. I packed up, got all my gear, made sure everything was set. I have been flying alone since I was 15. I knew the drills, even with all the new protocols, I could navigate this hell.

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Traveling Thoughts Through a Different Set of Eyes

Traveling Thoughts Through a Different Set of Eyes

A teenage girl was rolled in a wheelchair out to the plane in front of the other passengers, picked up and fireman carried up the steps into the plane and placed in her seat. All the time she and her travel companion had a big smile. They thanked the worker who carried her and sent a smile to the li

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